#‎ButterflyChildren‬ ‪#‎ButterflyPrincess‬
In many countries, Butterfly Children, especially fragile but brave, is a term often used to describe younger patients because their skin is as fragile as a butterfly’s wings. We use this metaphor to paint a positive picture of people with a serious fate…
Yesterday, off to daycare, dressed up as my own little „butterfly princes”. EB and carnaval costumes, certainly not a foregone conclusion. But with a little bit of imagination, a little bit af creativity and of course a little bit of magical pixie dust, everything is possible…